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  1. Strona główna
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Przeglądaj wg Słowo kluczowe "Down syndrome"

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    Postawy rodziców wobec dziecka z zespołem Downa
    (Oficyna Wydawnicza AFM, 2011) Dębska, Grażyna; Cisoń-Apanasewicz, Urszula; Potok, Halina; Leśniak, Magdalena
    Introduction. The birth of a baby is a very important moment for each family. It is even more important when the newly born family member suffers from a disease or is disabled, like in case of babies afflicted with Down syndrome. The disorder evokes varied and changeable attitudes and feelings of parents towards their children. According to statistics, out of 600–700 babies born alive there is one affected by Down syndrome. Such a child may show diff erent degrees of mental disability, a wide range of dismorphic symptoms as well as suffer from various developmental defects affecting both their organs and systems. The families of such children encounter numerous barriers and difficulties, and their lives change completely. Aim of the work. To show what percentage of parents show positive and negative attitudes towards their children and to fi nd out which attitude prevails among the parents of children affected by trisomy 21. Materials and methods. A diagnostic ballot was used to collect data for the research. The respondents were asked to fill in the questionnaire of parental attitudes by Maria Ziemska. The research was conducted in February and March 2010 on the group of 31 mothers of children suffering from Down syndrome, 24 of the women belonging to foundations and associations working for the benefit of the children affected by the syndrome. Results and conclusions. According to the research, most of the mothers show negative attitudes towards their children. These involve overprotection, excessive protection against peers and the whole world, helping the children out with everything, restricting them and setting them lower challenges. The minority of mothers show positive or border attitudes. It is worth mentioning that the right attitude towards the child, and its acceptance are essential and determine a happy and stately life of a child suffering from Down syndrome.
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    The Experience of Stress in Parents of Children with ASD in the Context of the Pattern of Temporal Perspectives and Subjective Sense of Social Support
    (Wydawnictwo Naukowe EDUsfera, 2025) Kossewska, Joanna; Piątek-Kłosowska, Martyna
    Abstract:"Aim. The aim of the study was to determine the relationship between the levels of stress experiencing by parents of children with ASD and their time perspective pattern and subjective social support. Zimbardo time perspective theory is crucial to exploring both the predictors of positive health outcomes and stress-related mental health problems. Methods and materials. The study group consisted of three equal groups of parents (parents of children with ASD, N=30; parents of children with Down Syndrome, N=30; parents of children with typical development, N=30). The following questionnaire measures were used: the Perceived Stress Scale (PSS-10), the Multidimensional Social Support Scale (MSPSS), and the Zimbardo Time Perspective Inventory (ZTPI). Results and conclusion. The results of the study showed that (1) parents of children with ASD experience higher levels of perceived stress compared to other parents, and (2) there was a statistically significant difference in the three time perspectives between parents of children with ASD and parents of children with typical development. It was proved that the level of perceived stress in parents of children with ASD correlates negatively with perceived social support. Perceived stress in parents of children with ASD was related to the specific time perspective pattern (negative past perspective and fatalistic present perspective correlated positively with stress, while positive past perspective and hedonistic present perspective correlated negatively). Higher levels of stress were experienced by parents of children with ASD who have negative beliefs about their past and a pessimistic attitude towards their present experiences."(...)

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